We just found out that Ava Gray will be going to surgery today at 1:00 pm. They think there may be a kink in her shunt, so they are going to "revise" it (which means they'll go in and replace the tube or catheter that runs from the shunt in her head to where it drains in her heart). The wonderful news is, we may be able to go home tomorrow if all goes well. Wouldn't that be amazing?
So to catch up: since I last wrote, Ava Gray has had to have 2 taps of her shunt (to draw off the extra fluid that's causing the pressure in her skull to build). By the time they would tap the shunt, however, she would already be in a good bit of pain. As you can imagine, she had a rough lil' night here in the PICCU. Through it all, I continue to be amazed by her tender, fighting spirit. Love this little girl so! The other loved girl (Havster) is off to nap and then go for a swim in the pool with her dear buddy, Ana. She is almost sure to have a blast. : ) Laura D has arrived here at Vandy with food & music & energy to spare (good thing: I was out of all 3!). She plans to stick right close to Ava Gray so I can catch a nap or two here in the room & possibly stay the night with Ava Gray tonight after her surgery. Kristina P. pulled the night shift with Havyn at home last night. I seriously don't know what I would do without these women. Even in this exhausted state, I am keenly aware of how much I (and we) are blessed!
Will touch base after the surgery and let you know how she's doing. Thank you for....well, you know.
Off to nap,
Jules
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